ABPI response to Sudlow review on the use of health data

An independent review has revealed that complexities and inefficiencies within the UK’s health data infrastructure are hindering the effective use of health data resources critical for improving people’s health.

In her review, ‘Uniting the UK’s Health Data: A Huge Opportunity for Society,' Professor Cathie Sudlow outlines how health data can be used for research to improve people’s health by removing unnecessary barriers while protecting patient privacy.

Responding to the review, Janet Valentine, ABPI Executive Director, Innovation and Research Policy, said:

“The Sudlow review has set out a compelling rationale for why research access to health data is fundamental to patient and population health and should be considered as an essential part of our national infrastructure.

“Access to health data is essential for the research and development of new medicines and vaccines, and so we fully endorse the recommendation to establish a national health data service. In taking this recommendation forward, it will be essential that government understands user needs, engaging across all research sectors from the outset to design and implement of a shared vision.

“We also fully support the Review’s recommendation to engage with healthcare professionals, patients and the public so that the system that is created has widespread support.

“The UK is not starting from a blank sheet, as there are already internationally recognised health data research services in this country. The government should build on these successes and consolidate the strengths of the UK to create a truly world-leading health data research infrastructure. The ABPI looks forward to being part of these discussions as plans evolve.”